Comment on punk's not dead, it's disabled

  1. Chameleon_Incognito on Chapter 1 Thu 11 May 2023 10:31PM UTC

    I didn’t see the tag that says Shinsou has narcolepsy at first, so when Denki said carbs and sugars are a trigger, I was like “huh sounds like me,” scrolled back to the tags and sure enough there it was 🤣
    I once made the mistake of eating a bready-pastry before an meeting. I was doing so good, and I have a tendency to be micromanaging with what I eat, so I told myself it would be fine. It was not. 🥲
    I’m impressed you included such a detail, most don’t know things like that about narcolepsy (unless you have it…?). I don’t want to speak too soon, but it makes me hopeful your depictions of each disability are going to be accurate, which is so rare!
    I’m looking forward to binging the rest of this! 🥰

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    1. lightning_anon on Chapter 1 Tue 23 May 2023 06:07AM UTC

      Damn I've def made the mistake of like 'oh hey it'll be fine this once" and then come later it kicking me in the ass. I let my roommates smoke inside once bc I was like ahhh it's not That big of a deal and I was OUT for the rest of the day lmao so I totally feel you.

      And yeah!! Of course!! This fic is about showing the real life of us disabled folks and diet management for symptoms can be a huge part of that. I don't have narcolepsy and could never fully understand the experience. But I do have friends who have narcolepsy and catatonia, cataplexy, and beyond. I have chronic fatigue as well and my job and education is literally disability studies and stuff so I like to think I know what I'm talking about and when I don't I do adequate research.

      I'm multi-disabled myself so I understand the importance of accurate rep and also the disabled experience. The big Name Titles of disability often aren't the big things. It's the symptoms, the life changes, the little things. Things like making sure u eat food with ur meds but being too exhausted to get groceries. Y'know?

      I'm glad this is something you could so authentically relate to and connect with. Thank you for sharing

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